Management
Guidelines
Portal
Nutrition Management Summaries and FAQ's for Families and Consumers

Consumer Summary Sheets and Consumer Frequently Asked Questions(FAQs), based on our rigorous Nutrition Management Guidelines, are intended for Families and Consumers.

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Disorder Consumer Summary Consumer FAQ
MSUD
(Maple Syrup Urine Disease)
Amino Acidemia
MSUD Summary Sheet (English pdf)
MSUD Summary Sheet (Spanish pdf)
MSUD FAQ (English pdf)
MSUD FAQ (Spanish pdf)
PKU
(Phenylketonuria)
Amino Acidemia
PKU Summary Sheet (English pdf)
Updated 2022 for Pegvaliase

PKU Summary Sheet (Spanish pdf)
Updated 2022 for Pegvaliase
PKU FAQ (English pdf)
PKU FAQ (Spanish pdf)
PROP
(Propionic Acidemia)
Organic Acidemia
PROP Summary Sheet (English pdf)
PROP Summary Sheet (Spanish pdf)
PROP FAQ (English pdf)
PROP FAQ (Spanish pdf)
VLCAD
(Very Long-Chain Acyl-CoA Dehydrogenase Deficiency)
Fatty Acid Oxidation Disorder
VLCAD Summary Sheet (English pdf)
VLCAD Summary Sheet (Spanish pdf)
VLCAD FAQ (English pdf)
VLCAD FAQ (Spanish pdf)
MCAD
(Medium-chain acyl-CoA dehydrogenase)
Fatty Acid Oxidation Disorder
tba tba
CIT
(Citrullinemia)
Urea Cycle Disorder
tba tba
ASA
(Argininosuccinic aciduria)
Urea Cycle Disorder
tba tba
ARG
(Argininemia)
Urea Cycle Disorder
tba tba

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