Numerous barriers, listed below, interfere with the provision of optimal care for individuals with PKU. While infrastructure, patient-related, and regulatory barriers present significant challenges, implementation of recommendations in this guideline has minimal impact on resource needs. The recommendations clarify management goals and support clinical decision-making without adding to the number of clinic visits or testing, or the amount of contact time with the metabolic dietitian.
Infrastructure barriers to implementation include:
Patient-related barriers to implementation include:
Regulatory barriers to implementation include: