The Nutrition Management Guideline for individuals with very-long-chain acyl-CoA dehydrogenase deficiency (VLCAD) is part of a larger project undertaken by the Southeast Regional Genetics Network (SERN) (HRSA Region 3) and Genetic Metabolic Dietitians International (GMDI) to develop nutrition management guidelines for inherited metabolic disorders (IMD).
The purpose of this guideline is to foster optimum nutrition management of individuals with VLCAD and reduce the uncertainty and variability in the management of this IMD.
The target population includes individuals with VLCAD at all life stages from the newborn period, through childhood and adolescence, to management in the adult years and during pregnancy. These guidelines include management during periods of health and illness.
The guidelines are intended for use by metabolic dietitians, physicians, others of the health care team and researchers who collaborate to provide care and advice for individuals with VLCAD as well as their families, advocates, and others.
Sponsorship is shared by SERN and GMDI.
Funding for this project has been provided by Health Resources and Services Administration (HRSA) grant number: #UH7MC30772 and GMDI.