A limited number of educational resources are currently available to support nutrition management of VLCAD.
Learning objectives for individuals with VLCAD and their caregivers include:
Support and Advocacy Groups
https://www.fodsupport.org
https://www.newbornscreening.info/Parents/fattyaciddisorders/VLCADD.html
https://ghr.nlm.nih.gov/condition/very-long-chain-acyl-coa-dehydrogenase-deficiency
https://rarediseases.org
http://www.climb.org.uk
Nutrition Information
($ = indicates available for purchase)
Find a Nearby VLCAD Health Care Provider
VLCAD Medical Information Online
http://www.acmg.net/PDFLibrary/C14.pdf
http://www.acmg.net/PDFLibrary/C14-1-Elevated-Algorithm.pdf
https://www.ncbi.nlm.nih.gov/books/NBK6816/
https://www.newbornscreening.info/information/information-for-providers/genetics-overview-for-providers/
Clinical Nutrition Tools
https://metabolicpro.org/
https://ndb.nal.usda.gov/ndb/